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| − | ADDITIONAL MISSION
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| − | Context: Norbert (Assoc. VP Research) asked me to form an Institute.
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| − | An Institute is like a Centre, but is overseen by SFU Research,
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| − | while a Centre is overseen by a Dean.
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| − | There are huge amts. of politics involved, so please keep
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| − | this under your hat. If, however, you find that it would be very
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| − | helpful to contact anyone you know in campus PR, maybe you
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| − | could phrase it as people we'd like to invite to the Open House?
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| − | (We would anyway.)
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| − | (a) Identify any potential members of an Institute re: Pain at SFU.
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| − | NOTE: Health Sciences just unveiled a Chronic Diseases Centre (or Institute).
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| − | (b) We first have to find that document,
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| − | which hopefully is somewhere on SFU's site.
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| − | c) Then, we need to look at any faculty member at SFU
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| − | from any department whose work may be applicable outside of Health Sciences.
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| − | d) Then within Health Sciences.
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| − | (Sounds crazy, but requires a FTF description.)
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| − | This could be someone obvious, like Ellen Balka,
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| − | does not do anything related to pain per se,
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| − | but whose research would definitely be related
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| − | (Health Comm., usability).
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| − | Perhaps there are faculty who deal with biofeedback (Psychology, Bio)
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| − | and Chronic Pain Sequelae (depression, insomnia, anxiety, social isolation,
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| − | drug dependency, kinesiophobia] (Kinesiology).
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| − | Maybe CS, Anthropology (of Medicine)/Ethnography,
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| − | Criminology (their addiction experts may not be focused on dependency
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| − | vs. addiction, but you never know), Philosophy, and so on.
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| − | This will take creative & strategic thinking, so don't be afraid
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| − | to suggest suggest people whom you think would be a longshot,
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| − | like a VR guy from Geology.
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| − | Pay particular attention to newly hired faculty (2005 onwards),
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| − | CRCs, Chairs and so on -- they have less to lose and fewer
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| − | politics, possibly.
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| − | There's a book of essays from Harvard Press on Pain Studies --
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| − | (Pain and Its Transformations)
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| − | it may be helpful to look at the contents page to see the potential reach,
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| − | as they include experts who range from sociology to music,
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| − | dance, ethnography, philosophy and so on.
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| − | Perhaps an ENglish Prof. who write about the body, things like that.
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| − | The goal is to find 5 people who will say yes, so that usually takes
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| − | 10-15 people for me to contact and meet with.
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| − | Priority level #1
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| − | At the moment, this is the burning issue, esp finding the
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| − | Health Sciences' Chronic Diseases Centre (Institute?) document.
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| − | (Because ours can't be a big overlap.
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| − | I think they are more focused on policy & community issues tho.)
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| − | It would be great to have it for next Wed., both in email and printed out.
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| − | ---------------------------------------------
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| − | Please also remind me to update you re: additional RA hours after
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| − | Chris and I return from the NCE GRAND meeting Feb.13th.
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| − | It is going to be very busy from then until Feb.24th, which is
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| − | when the ISEA proposal is due.
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| − | SPRING 2012: Main idea:
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| − | maintain social media
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| − | help w/budget stuff
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| − | help w/maintaining contact
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| − | help strategize w/issues below (that we can produce in the summer)
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| − | DGr call Desiree re: paying Terry past amt.
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| − | DGr call SFU Finance re: iPad purchases
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| − | DGr review budget w/Shaw (10-20 hrs./week spring, 20+ summer)
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| − | Terry's estimates
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| − | 5 hours a week: maintain social media in current form
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| − | + 5 hours a week: move blogsite, create strategy for moving info to portable devices, create fiducals
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| − | Pain Toolbox
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| − | NOTE: Chris takes care of most NCE GRAND budgetary things.
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| − | ---------------------------------------------
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| − | MISSIONS
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| − | • Maintain social media work
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| − | • budgetary help: DGr will locate 5 submissions
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| − | help Dgr w/excel spreadsheet
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| − | review NCE GRAND budget, non-salary items (travel, equipment, materials*)
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| − | Terry can be back-up for reimbursements when DGr is out of town or unavailable
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| − | • Pain Toolbox
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| − | Please familiarize yourself with it
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| − | Please check to see if Pain BC has it on their website
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| − | This is a tricky thing for 2 reasons:
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| − | 1. patients are overwhelmed with info,
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| − | 2. and their condition usually changes, with an emphasis from one problem to another.
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| − | The approach of most pain docs is to address the most current & difficult sequela -- insomnia, depression, etc.
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| − | The treatment approach is also two-fold: what the physician can do (rx, procedures) PLUS referrals to other health care professionals.
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| − | Currently, the Pain Toolbox is great as a resource (think yellow pages of service providers who have been sanctioned as good ones)
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| − | BUT
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| − | it is badly designed (need 2 good undergrads to make it legibile), and
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| − | it COULD be better used as an info/educational and pain management tool.
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| − | What's missing for its use as a tool is a huge gap about how patients can USE the toolbox
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| − | other than as yellow pages.
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| − | As one baby step toward that, I wrote small paragraphs as headers for each "tool,"
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| − | so that even if patients don't need to use that tool at the moment,
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| − | they have a modicum of info about it.
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| − | knowledge translation as an intermediary step toward greater use of technologies
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| − | I have 4 CIHR grant proposals in progress:
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| − | On one (UofT) -- the only one that has been decided upon (we got it!) -- I'm a "knowledge user."
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| − | Medical researchers are very progressive I think because they tend to
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| − | include "knowledge users" (patients, experts who aren't doctors) on their grant proposals.
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| − | On the other CIHR grant proposals, I'm a PI described as an expert in "knowledge translation."
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| − | Medical researchers seem to have no familiarity with the idea of design,
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| − | let alone more creative things we can do (like games, social media, robots, etc.).
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| − | So this is an intermediary step that enables us to gain acceptance in their world,
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| − | and to be useful WHILE we educate them about what is possible.
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| − | All of the BC docs will go for more progressive ideas --
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| − | they are risk-takers (not in the sense of treating patients,
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| − | but in the sense of how to address this big, complex issue of pain management).
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| − | As an important part of the above, it is crucial that we stay in touch with them,
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| − | which is difficult for only me to do. Meehae is good at that, but is on leave.
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| − | I'm thinking that you and possibly Andrea would be good ambassadors too.
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| − | So, as part of your RA, can you please:
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| − | • keep in contact with doctors when they email us:
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| − | Pam Squire
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| − | Brenda Lau (Surrey Memorial)
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| − | Linda Li (Arthritis Centre of Canada)
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| − | Andrea Furlan (UofT, Workplace Canada, National Pain Centre)
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| − | and
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| − | • help facilitate the lab visit for Linda Li and Andrea Furlan.
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| − | As I mentioned, they were classmates in med school, but I don't know if they are
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| − | friends or competitors. Linda's area is MSK (Arthritis, musculo-skeletal areas),
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| − | so competition may not be an issue.
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| − | BUT
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| − | I get an undeniable sense that other PAIN BC folks are either in competition
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| − | (Ontario has hoards more funding) OR just don't think that Andrea's direction
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| − | is as important as others. For example, Andrea designed the Opioid Manager
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| − | for doctors, but the responses I get is that most doctors simply don't have the
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| − | time to use it (they have like 27 other tools, and Health Canada is forcing each
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| − | to put all of their info online, which they don't get compensated for doing,
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| − | AND they are stuck in this middle ground of treatments that are either unrecognized
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| − | or under valued by Health Canada.)
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| − | Linda Li is an incredibly quick study, values design and wants to innovate.
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| − | She has a federal chair to do so.
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| − | So it may be better to have two distinct lab visits . . . I'll talk to Linda to get a better sense.
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| − | More work, but ultimately probably better for outcomes.
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| − | Also, Linda Li has funding for social media for a grad student and a postdoc!
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| − | (Regularly, it seems.)
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| − | • UofT: keep in contact with Dr. Ron Baecker, & possibly Alison Benjamin, Jessica David
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| − | Terry, we didn't get to this one, but we are working with Baecker on
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| − | NCE GRAND things re: social media, and need to keep in touch with him.
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| − | The best approach is FTF: to actually go there, or make sure he comes to our lab when he is in town.
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| − | I'll go there in February and strategize what our next steps should be (2nd weekend in Feb.).
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| − | If you can take the subsequent visits, that would help enormously.
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| − | (Also, check out UofT's HCTP program for postdoc work.)
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| − | Options I discussed with him are to possibly:
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| − | a) look at Alison Benjamin's studies to see what other papers we can derive from that info
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| − | please ask me for that tomorrow
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| − | b) I'll check with Jessica to see where her diary study is, but she doesn't want to
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| − | "work with sick people," so it either may wither, OR we may be able to pick it up
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| − | c) doing a study using Ron's picture frame
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| − | d) conducting a study that piggybacks onto one of his -- we've been wildly productive
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| − | in doing this (his users: dementia patients)
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| − | e) doing a design evaluation of his picture frame
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| − | If we can figure out something that will attract his attention, we'll be golden.
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| − | For instance, EVERYBODY loves our two papers based on Alison's studies (see CSCW this year).
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| − | The CSCW paper is in the running for "best paper."
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| − | In any case, starting 2 years ago, the computational conferences suddenly didn't
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| − | ignore the issue of chronic pain, but are now interested in it. Dunno why -- may be because
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| − | it is NOT "just" about health records.
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| − | Please familiarize yourself with his TAGLab site (Technologies for Aging Gracefully).
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| − | Please think about what we could do . . .
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| − | In general, by "staying in touch," I mean being responsive.
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| − | They are all way too overloaded to want things like tweets, feeds or general inquiries,
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| − | but I do send them a semi-annual update, esp. when we accomplish something.
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| − | I also ping them when I find a potential grant or so on.
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| − | Help organize an NCE GRAND PI meeting
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| − | (Gromala, Shaw; Baecker, Bartram, MacLean/UBC, Carpendale/Calgary, Gardner/OCAD)
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| − | ---------------------------------------------
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| − | DIscuss viability of organizing a brainstorming workshop w/ 6-8 local patients.
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| − | They are itching to help, and I'd hate to lose their interest, but we have so many other things to do,
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| − | so if we can find double-duty . . .
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| − | Finally , if you could keep an eye out for talented undergrads, that would help --
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| − | I no longer have regular contact with them . . .
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